Journal of Diabetes Medication & Care

Neonatal End Of Life Innovations

The purpose of this project is to educate professionals and enhance their preparation and support for a peaceful, pain-free, and family-cantered death for dying new burns. The protocol of care suggested will help to establish palliative care efforts that are every bit as meaningful, and as clinically and socially acceptable, as the provision of continued life-extending endeavours. Palliative care for new burns is holistic and extensive care for an infant who is not going to ‘‘get better.’’ Palliative care focuses on both the infant and his/her family. Palliative care may initially be combined with cure-oriented, disease-modifying care and then intensify when that form of care is no longer helpful or appropriate. Palliative care is an entire milieu of care to prevent and relieve in fan suffering and improve the conditions of the infant’s living and dying. It is a team approach to relieving the physical, psychological, social, emotional, and spiritual suffering of the dying infant and the family. Palliative care focuses on the prevention and relief of physical pain and suffering for the infant and on relief of existential suffering of the family. It is a planned intervention by trained interdisciplinary staff members who support with dignity the infant’s time on earth and support the family’s experience with empathy and culturally sensitive respect. The palliative care described here initially refers to inpatient treatment facilities, but it also may be applicable to the outpatient setting. The inpatient setting is initially described as it requires around the clock nursing assessment, physician management, and interdisciplinary support to manage symptoms that could occur in the dying new born such as pain, difficulty breathing or seizures.  

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